There is nothing that replaces the information provided within the physician-patient relationship, but we also understand and strongly believe that patient education and self-empowerment are important drivers of successful disease management. While the internet represents an immediate source of medical information, it is also fraught with misinformation, which can lead to confusion, information overload, and ultimately, suboptimal outcomes. It is with thisin mind that we provide here a list of helpful websites, all of which have been reviewed by our physicians and deemed to be good sources of reliable information. As always, we strongly recommend that you review any such information with your physician before making any medical decisions.
The Arthritis Foundation is the only national not-for-profit organization that supports the more than 100 types of arthritis and related conditions. It offers information and tools to help people live a better life with arthritis.
The Lupus Foundation of America (LFA) is the oldest and largest national nonprofit voluntary health organization focused on improving the quality of life for people with lupus.
Vasculitis is a family of rare diseases that can affect people of all ages. The vasculitis foundation provides numerous resources to patients, physicians, and interested members of the vasculitis community.
Fibromyalgia is characterized by chronic widespread pain, multiple tender points, abnormal pain processing, sleep disturbances, fatigue and often psychological distress. The National Fibromyalgia Association is a nonprofit organization made up of devoted individuals who made a concentrated effort to create a voice for people with fibromyalgia by supporting and staging awareness events, encouraging high profile media coverage, and providing support and training to support group leaders across the country.
Osteoporosis is a condition in which the bones become weak and can break more easily. The National Osteoporosis Foundation is the leading consumer and community-focused health organization dedicated to the prevention of osteoporosis and broken bones, the promotion of strong bones for life and the reduction of human suffering through programs of public and clinician awareness, education, advocacy and research.
Myositis is the popular term used to describe a number of inflammatory myopathies like dermatomyositis, inclusion-body myositis, juvenile forms of myositis and polymyositis. These diseases cause swelling and loss of muscle. The Myositis Association of America is a non-profit corporation that provides medical information to staff and patients.
Scleroderma, or systemic sclerosis, is a chronic connective tissue disease that involves changes in the skin, blood vessels, muscles, and internal organs. The Scleroderma Foundation is a national organization for people with this condition that offers extraordinary educational material.Next: Policies & Forms